The Australian Paediatric Surveillance Unit (APSU), established in 1993, is a unique resource which has provided vital national data on 53 rare childhood diseases – an important but often neglected area of research.
The APSU fosters collaboration by supporting the establishment of national research teams for each rare condition studied. Up to 16 different rare conditions can be studied simultaneously and data on demographics, diagnosis, clinical management and outcomes are collected.
The APSU provides national coverage by involving an estimated 90% of all paediatricians around Australia who each receive an APSU report card every month. The success of the system is a credit to Australian paediatricians, some of whom have been reporting to the APSU every month for 20 years.
APSU is a member of the International Network of Paediatric Surveillance Units (INOPSU).