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Gene therapy trial success: game changer for children with SMA
  • 16 August 2021
Gene Therapy
New research has shown that gene therapy may provide an effective treatment for Spinal Muscular Atrophy (SMA), a devastating and fatal genetic condition. The first part of the results from the SPR1NT trial were presented at the European Academy of Neurology (EAN) Conference recently.  What is SMA? SMA affects the motor nerve cells in the spinal cord, causing progressive muscle weakness...
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SCHN Researcher awarded top leadership in public health research by NHMRC
  • 16 August 2021
Award
Professor Allison Tong, Co-Leader of Centre for Kidney Research Clinical Research group at Kids Research, Sydney Children’s Hospitals Network and Principal Research Fellow at the University of Sydney’s School of Public Health has been awarded the National Health and Medical Research Council (NHMRC) Elizabeth Blackburn Investigator Grant Award. The prestigious award recognises and celebrates he...
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SCHN researchers awarded Young Tall Poppy Science Award 2021
  • 16 August 2021
Award
Congratulations to Dr Tegan Cheng and Dr Orazio Vittorio for being awarded the 2021 Young Tall Poppy Science Award! The Tall Poppy Science Award is an initiative of the Australian Institute of Policy and Science (AIPS), acknowledging excellence in research and commitment to communicating science to a broad audience. The awards are held in each state to celebrate researchers across science, eng...
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Gene therapy project ranked top idea in Australia
gene therapy
A gene therapy project to save infants’ lives has been named the top-ranked National Health and Medical Research Council (NHMRC) Ideas Grant for 2020. The project led by Professor Ian Alexander and his team were awarded the 2020 NHMRC Marshall and Warren Ideas Grant Award at the NHMRC Research Excellence Awards Dinner on June 16th. Professor Ian Alexander, Head of the Gene Therapy Research Uni...
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Clinical Trials Day 2021: words from a research nurse
  • 19 May 2021
Clinical Trials
International Clinical Trials Day is celebrated around the world in May to acknowledge and celebrate the many people who are involved in clinical trials. It is also a unique opportunity to raise awareness about the importance of clinical trials and clinical research as a career option – among the greater public. Learn more about Clinical Trials Day here Read the words written by Aimee Williams...
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Watch: Advanced Therapeutics webinar - Ocular Gene & Cell Therapies
  • 05 May 2021
Webinar Series
Watch the video of this webinar to hear from two experts in the fields of genetic retinal diseases and stem cell biology discuss Ocular Gene and Cell Therapies and the tremendous new hope they bring to the treatment of these retinal diseases. Ocular Gene Therapy is the first in vivo gene therapy approved by the Therapeutic Goods Administration (TGA) here in Australia for clinical use...
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Webinar series: Ocular Gene & Cell Therapies - the new frontier of vision research & treatment
  • 01 April 2021
Webinar Series
Registration now open! Register now and join our 3rd webinar of the Advanced Therapeutics series. In this webinar, we will be focusing on Ocular Gene Therapy, the first in vivo gene therapy approved by the Therapeutic Goods Administration (TGA) here in Australia for clinical use in inherited retinal diseases. Inherited retinal diseases are a group of conditions that disproportionately affect c...
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New research funding for projects with migrant & refugee family and children in rural NSW
Population Health
Our researchers at Kids Research, Sydney Children's Hospitals Network have been awarded over $1.8M in funding in the latest OHMR Translation Research Grants Scheme (TRGS) for two research projects with a focus on migrant and refugee families and rural children in NSW respectively.  RuralKidsGPS - delivering equitable care to children in rural NSW Chief investigators: Prof Raghu Linga...
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World Purple Day: Improving diagnosis for children with severe genetic epilepsy
  • 25 March 2021
Epilepsy
World Purple Day is celebrated on the 26th March, a day aimed at raising awareness of epilepsy. What is Epilepsy? Epilepsy is one of the most common neurological disorder that affects the brain, often causing seizures. Around 65 million people in the world have epilepsy and although epilepsy can develop at any stage of life, it is more common in children, adolescents and people over 60....
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Genetic testing – changing the way we treat kidney disease
  • 11 March 2021
Kidney Research
Kidney disease impacts 1.7 million Australians each year, with Chronic Kidney Disease (CKD) being the most common form of kidney disease. CKD is a condition characterized by a gradual loss of kidney function over time. CKD is increasingly recognised as a major burden on our health systems and even more so on those affected by it. Over 50% of childhood kidney disease has a genetic cause. Until...
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Cnr Hawkesbury Rd & Hainsworth St
Westmead, NSW 2145, Australia

Bright Alliance, Level 8
Cnr Avoca & High St
Randwick, NSW 2031, Australia

General Enquires

T: +61 2 9845 1400
F: +61 2 9845 1317
E: schn-research@health.nsw.gov.au

The Sydney Children's Hospitals Network

Partners

Children's Medical Research Institute
Luminesce Alliance
The Westmead Institute
University of Sydney
UNSW Sydney

The Sydney Children's Hospitals Network

Address

Cnr Hawkesbury Rd & Hainsworth St
Westmead, NSW 2145, Australia

Bright Alliance, Level 8
Cnr Avoca & High St
Randwick, NSW 2031, Australia

General Enquires

T: +61 2 9845 1400
F: +61 2 9845 1317
E: schn-research@health.nsw.gov.au

Partners

Children's Medical Research Institute
Luminesce Alliance
The Westmead Institute
University of Sydney
UNSW Sydney