News & Events

Medicinal Cannabis
Medicinal Cannabis: Positive results in treatment of children with seizures from Tuberous Sclerosis Complex (TSC) A phase 3 clinical trial has shown that the cannabis-based medicine Epidiolex ® (cannabidiol oral solution or CBD) manufactured and supplied by GW pharmaceuticals was successful in the treatment of seizures associated with Tuberous Sclerosis Complex (TSC). TSC is a rare genetic...
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Gene Therapy
Therapeutic Innovation Australia (TIA) has announced their investment of $8.8M towards leading cell and gene therapy development and manufacturing facilities across Australia over the next four years. Sydney Cell and Gene Therapy (Westmead), part of the Sydney Children’s Hospitals Network (SCHN) is one of the lead facilities that will be supported through this investment to continue work in revol...
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  • 02 May 2019
Investigating the cause of miscarriage and infertility is the focus of a new study from the Kids Research team - which will change the way clinical geneticists search for the genetic basis for unexplained, recurrent, prenatal death or infertility. “Finding the genetic cause of single gene disorders have come a long way but it’s still really difficult for families with prenatal death or miscarr...
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  • 12 April 2019
Almost 15 years ago while working as a Clinical Geneticist at The Children's Hospital at Westmead, Professor Robyn Jamieson was introduced to the White family. Mum, Beth had come to her about her vision loss then, in 2015 it was discovered that Beth's three childrens were also showing signs of vision loss.  “I had seen the family and we knew that Beth had retinal dystrophy, but she als...
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Dan Catchpoole
Biobanking
Associate Professor Dan Catchpoole, Head of the Tumour Bank in the Children's Cancer Research Unit , has been elected by his peers as the new President-Elect on the Board of Directors for the International Society for Biological and Environmental Repositories (ISBER). In the new role he will undertake a number of executive responsibilities as well as assisting to guide the...
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Illustration of a couple comforting each other
Bereavement
Existing bereavement support for families, friends, community members and health professionals affected by childhood cancer now includes three additional translations of the audio-visual By My Side resource, aided by a Multilingual Information Projects grant from the South East Sydney Local Health District. The By My Side bereavement resource was launched in 2016 by researchers at the Behaviou...
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Dragonfly by Leanne Tobin
Aboriginal health
The federal government has announced funding for a new 10-year Indigenous Health Research program to improve the health of Aboriginal and Torres Strait Islander people. In working to Close the Gap in health outcomes between Indigenous and non-Indigenous Australians, three major priorities have been set by the program, which address the biggest preventable health challenges faced by Aboriginal...
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Virtual reality goggles
Virtual reality
Associate Professor Dan Catchpoole, Head of the Tumour Bank at the Children’s Hospital at Westmead, has been awarded $260,000 to use Virtual Reality (VR) visualization to allow childhood cancer specialists to make more informed treatment decisions for their patients, thanks to an innovative grant program by the Sony Foundation and cancer charity Tour de Cure. The program aims to bring medical...
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Patient navigators
A clinical trial for children with chronic kidney disease (CKD) will help address health inequities experienced by children with CKD from low socioeconomic backgrounds. The trial received funding under a national program of the Medical Research Futures Fund to boost clinical trial activities into rare cancers, rare diseases and unmet needs. Subject to receiving all ethics and regulatory a...
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Research integrity
Professor Jennifer Byrne, head of the Children's Cancer Research Unit and professor of molecular oncology at the University of Sydney, has been digging deeper into scientific fraud since she made an alarming discovery one night in 2015 as she was browsing through research papers on PubMed.  She noticed striking similarities between several papers published by differe...
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