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Flicker of hope for Neurofibromatosis (NF) cure

16 May 2022
Neurofibromatosis

Left to right: A/Prof Aaron Schindeler, Elizabeth Anne Elliott (Flicker of Hope Ambassador), Zoe Petropoulos (Flicker of Hope Ambassador) and Colin Allen (SCHF)

World NF Awareness Day

A new research project aimed at finding a cure for the genetic disorder Neurofibromatosis (NF) has been given a flicker of hope. The project underway at The Children’s Hospital at Westmead (CHW) has received $350,000 in funding from the Flicker of Hope Foundation delivered through the Sydney Children’s Hospitals Foundation. This boost will go towards a gene therapy approach to NF, led...

Breakthrough treatment for kids with NF1 muscle weakness

29 November 2021
Neurofibromatosis

NF1 treatment breakthrough

A commonly available nutritional supplement has inspired 11-year-old William Aberley’s self-confidence as he takes part in sports, both in and outside of school. This might seem ordinary, but not for William, who was diagnosed with Neurofibromatosis type 1 (NF1) as a toddler. NF1 is a hereditary genetic disorder affecting about 1 in 3,000 children worldwide. It’s commonly characterised by...

Funding boost for Neurofibromatosis Type 1 research into muscle weakness

11 May 2018
Neurofibromatosis

Research

Congratulations to Associate Professor Aaron Schindeler, who has been awarded a Drug Discovery Initiative grant from the US Children’s Tumor Foundation. The project will investigate treatments for muscle weakness and fatigue associated with the genetic disease Neurofibromatosis type 1 (NF1), to help children suffering from the condition. NF1 is one of the most common ge...

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