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Purple Day
At just 12 months old, Bronte had her first seizure. It was a febrile convulsion with a very high fever, which isn’t uncommon for babies. However, from that time on she continued having seizures and some would go for over an hour. At five years old Bronte was diagnosed with a severe form of epilepsy called Dravet syndrome. Dravet Syndrome starts in early infancy and is characterised by frequen...
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Purple Day
With over 50 subtypes and 400 known genes, epilepsy is one of the most genetically studied disorders. It affects one in 200 children in Australia and one in 20 children will have at least one seizure during their childhood. Currently, there is no cure. Dedicated to delivering hopeful outcomes for these children are the teams across Sydney Children’s Hospitals Network (SCHN). It’s an effort nee...
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