Innovation and inspiration from abroad: A/Prof Kasparian wins Harkness Fellowship

Congratulations to Associate Professor Nadine Kasparian, who has won the prestigious Harkness Fellowship in Health Care Policy and Practice for 2018-2019, allowing her to spend a year at Harvard Medical School and Boston Children's Hospital working with the world’s top health policy experts.

The Fellowship will allow A/Prof Kasparian to extend her medical psychology program, which focuses on transforming mental health care for children with critical or chronic illness such as congenital heart disease.  The program has been developed through her clinical research at the Sydney Children's Hospitals Network (SCHN) Cardiac Service, where she is Head of Medical Psychology, and the School of Women's and Children's Health, UNSW Sydney.

A/Prof Kasparian is the only Australian this year to be awarded the highly competitive Fellowship, which is funded by the US-based Commonwealth Fund and modelled on the Rhodes Scholarships.  The Fund awards health services researchers and practitioners from Australia, Canada, France, Germany, The Netherlands, New Zealand, Norway and the United Kingdom, with the aim of producing the next generation of health policy leaders.

“This Fellowship represents an incredible opportunity for health professionals to work with exemplar centres in the US to develop health policy and practice innovations,” says Associate Professor Kasparian, who will begin her new role this week.

Based in Boston, and working closely with leading researchers from Harvard Medical School, Boston Children’s Hospital, Brigham and Women’s Hospital, Columbia University in New York and University of California in San Francisco (UCSF), she will analyse paediatric mental healthcare settings in the US, use big data sets to test differences in care, interview world-leading experts in the field, and develop a framework for better access to high quality, cost effective mental health care for children with chronic illness and their families.

“Diagnosis of a life-threatening condition during childhood can have profound emotional consequences,” she says. “Despite big advances, there are still important gaps in mental health care for these children and their families. Filling these gaps with innovative interventions can buffer the effects of chronic illness and make a lifetime of difference for a child.”

“Exposure to the complex US and international health systems will help inform new models of mental health care for more than 65,000 Australians living with congenital heart disease, as well as offer guidance for similar services for other childhood illnesses.”

In 2010, Associate Professor Kasparian, who is also a recipient of the National Heart Foundation's Future Leader Fellowship, opened the first psychology research program and clinical service dedicated to childhood heart disease at SCHN.

“Our program receives more than 550 new referrals a year, matching the number of heart operations performed at the SCHN Cardiac Service and demonstrating the significant need for mental health care,” she says. “Offering outstanding medical treatment without mental health care does our families a disservice. Being able to offer psychological care early – at the right time, in the right place – can change the way families are able to cope during times of medical crisis.”

Associate Professor Kasparian’s previous research has also identified parents’ preferences for new models of specialised paediatric cardiac genetics services, providing information about genetic and other risk factors associated with congenital heart disease.

She emphasised that about half of all babies with complex congenital heart disease are diagnosed during pregnancy and are currently not eligible for the NDIS.

“Our vision is to see high quality mental health care implemented as part of ordinary, routine care for children with critical or chronic illness and their families. The opportunity to work at Harvard Medical School this year will undoubtedly accelerate our capacity to deliver the best possible outcomes to those who need it most.”

Associate Professor Kasparian’s team has also recently received the 2018 SCHN Quality & Innovation Award for Excellence in the Provision of Mental Health Services, with the submission Cherishing Children with Heart Disease. Her team has since been nominated for a NSW Health Award, with outcomes to be announced soon.

“It’s a joy and privilege to lead our Sydney team and I look forward to sharing all I’m able to learn here in the States.”

Associate Professor Kasparian’s research is funded by competitive grants from the National Heart Foundation of Australia, HeartKids Australia, Australia’s National Health and Medical Research Council (NHMRC), UNSW Medicine Neuroscience, Mental Health and Addictions Theme and SPHERE Mindgardens Clinical Academic Group, and other funding and donation partners.