News & Events

  • 03 December 2019
Rare Diseases
Congratulations to Ruebena Dawes, PhD student at the University of Sydney Children’s Hospital Westmead Clinical School, who has received a Fullbright Future Scholarship to undergo training in the laboratory of one of the world’s foremost experts in genomic informatics, A/Prof Monkol Lek at Yale School of Medicine. The Fullbright Future Scholarship - offered by The Australian-American Fullbrigh...
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  • 28 October 2019
Spinal Muscular Atrophy
The successful implementation of the first state-wide newborn screening (NBS) program for spinal muscular atrophy (SMA) in Australia has been published in Genetics in Medicine, the journal for American College of Medical Genetics and Genomics. SMA is the leading genetic cause of infant death in Australia, with the disease occurring in one in every 10,000 births. SMA affects motor nerve cells i...
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Events
Kids Neuroscience Centre turns 20! Her Excellency the Honourable Margaret Beazley AO QC, Governor of New South Wales as Patron and Mr Dennis Wilson graciously hosted a reception for the Kids Neuroscience Centre 20th Anniversary at Government House. Here’s a look at the past 20 years of Kids Neuroscience Centre: For the past 2 decades, Kids Neuroscience Centre has been committed to...
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Grant Success
The new network research collaboration 'Big Brain' - a significant initiative that aims to shape research and clinical care for children with neurodevelopmental disorders has received a three year $510,000 grant from the Ainsworth Foundation through the Sydney Children's Hospitals Foundation.  'Big Brain' is a collaboration led by Prof Russell Dale, Dr Michelle Farrar and Prof Adam Guaste...
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Awards
Congratulations to Professor Joshua Burns, Director of the Paediatric Gait Analysis Service of NSW and the Humpty Dumpty Gait Lab at the Sydney Children’s Hospitals Network, and Professor of Paediatric Neuromuscular Rehabilitation at the University of Sydney recent major successes! Prof Burns has been awarded the Vice-Chancellor’s Award for Outstanding Research Higher Degree Supervision. The a...
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Events
‘Approximately one in ten children in Australia meet criteria for a neurodevelopmental disorder’ Professor Adam Guastella, Michael Crouch Chair in Child and Youth Mental Health, clinical psychologist and clinical trials specialist based at Westmead Children’s Hospital and the Brain and Mind Centre, University of Sydney is leading a national effort where leading experts from universities and he...
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- Achieved primary efficacy measure with both EPIDIOLEX doses as compared to placebo - - Represents the fifth consecutive positive Phase 3 pivotal trial for EPIDIOLEX - - Expect to file sNDA in Q4 2019 -   Carlsbad, CA, May 6, 2019: GW Pharmaceuticals plc and its U.S. subsidiary Greenwich Biosciences Inc. (NASDAQ: GWPH, GW, the Company or the Group), the world leader in the scien...
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Medicinal Cannabis
Medicinal Cannabis: Positive results in treatment of children with seizures from Tuberous Sclerosis Complex (TSC) A phase 3 clinical trial has shown that the cannabis-based medicine Epidiolex ® (cannabidiol oral solution or CBD) manufactured and supplied by GW pharmaceuticals was successful in the treatment of seizures associated with Tuberous Sclerosis Complex (TSC). TSC is a rare genetic...
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Medicinal cannabis
A phase III clinical trial has shown the cannabis-based medicine Epidiolex® (cannabidiol oral solution) to reduce seizures in children with Dravet syndrome, a rare and severe form of childhood-onset epilepsy.  Sydney Children’s Hospital, Randwick, was one of two sites in Australia to take part in the international study, which reinforced the safety and efficacy of the drug in reducing sei...
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Medicinal Cannabis
Findings into the safety of Epidiolex®, an experimental cannabis-based treatment for severe drug-resistant epilepsy in children, have been published in the Medical Journal of Australia. Under the NSW Government funded Compassionate Access Scheme, children with the most severe forms of childhood epilepsy, who are too sick to participate in a clinical trial, have an opportunity to access a canna...
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