News & Events

Genomics
Many families whose children have a rare genetic disease wait years for an accurate diagnosis. For the Keesing family, new genetic sequencing techniques led to an unexpected diagnosis that has changed their lives. Brandon was just six months old when his chest problems started. For several years he was hospitalised repeatedly with pneumonia and experts at The Children’s Hospital at Westmead di...
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Cancer
One of the main problems with chemotherapy for children with brain cancer is that the drugs damage the bone marrow. Researchers at the Kids Research Institute have been working for 10 years to develop a radical new treatment which uses gene therapy to stop this from happening. If successful, the technique will enable children to receive much higher drug doses than they can currently tolerate –...
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Bernadette's Story
It started like any other toddler bug: a high temperature, nausea and generally feeling unwell. But by 5am Bernadette’s body was covered in tiny red and purple spots. As one of the most serious cases of meningococcal B ever reported in NSW, Bernadette was put into an induced coma, helped to breathe artificially and hooked up to a dialysis machine as her kidneys failed. She spent five weeks in...
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Encephalitis, or swelling of the brain, can kill in hours. Five year-old Behnam Emery deteriorated from a sniffle and a headache at a birthday party on Saturday to intensive care by Monday morning. Behnam was transferred to The Children’s Hospital at Westmead from his local hospital. Fiona and Behnam’s father, Matthew, said goodbye to him as he was being wheeled off to have an MRI, and the nex...
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