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Improving community access through translation: By My Side bereavement resource
Illustration of a couple comforting each other
Bereavement
Existing bereavement support for families, friends, community members and health professionals affected by childhood cancer now includes three additional translations of the audio-visual By My Side resource, aided by a Multilingual Information Projects grant from the South East Sydney Local Health District. The By My Side bereavement resource was launched in 2016 by researchers at the Behaviou...
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New research programs to help close the gap for Aboriginal children
Dragonfly by Leanne Tobin
Aboriginal health
The federal government has announced funding for a new 10-year Indigenous Health Research program to improve the health of Aboriginal and Torres Strait Islander people. In working to Close the Gap in health outcomes between Indigenous and non-Indigenous Australians, three major priorities have been set by the program, which address the biggest preventable health challenges faced by Aboriginal...
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Understanding childhood cancer from the inside out with virtual reality
Virtual reality goggles
Virtual reality
Associate Professor Dan Catchpoole, Head of the Tumour Bank at the Children’s Hospital at Westmead, has been awarded $260,000 to use Virtual Reality (VR) visualization to allow childhood cancer specialists to make more informed treatment decisions for their patients, thanks to an innovative grant program by the Sony Foundation and cancer charity Tour de Cure. The program aims to bring medical...
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A helping hand for families affected by chronic kidney disease
Patient navigators
A clinical trial for children with chronic kidney disease (CKD) will help address health inequities experienced by children with CKD from low socioeconomic backgrounds. The trial received funding under a national program of the Medical Research Futures Fund to boost clinical trial activities into rare cancers, rare diseases and unmet needs. Subject to receiving all ethics and regulatory a...
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Nature World View: We need to talk about systematic fraud
Research integrity
Professor Jennifer Byrne, head of the Children's Cancer Research Unit and professor of molecular oncology at the University of Sydney, has been digging deeper into scientific fraud since she made an alarming discovery one night in 2015 as she was browsing through research papers on PubMed.  She noticed striking similarities between several papers published by differe...
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In the media: How genetic counsellors and ultra-rapid testing help parents search for answers they dread
Genetic counselling
The Australian Genomics Acute Care study provides the families of critically unwell babies access to rapid genomic testing, in the case that a rare, genetic condition is suspected. The national program, which is also being piloted in Victoria, Queensland and South Australia, aims to provide genetic testing for up to 250 babies in neonatal paediatric intensive care units within a ma...
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Why people born between 1966 and 1994 are at greater risk of measles – and what to do about it
People may unknowingly bring measles back from other countries, including Europe
Measles
This article was originally published on The Conversation, an independent source of news and views, sourced from the academic and research community and delivered direct to the public. Australia was declared free of measles in 2014. Yet this summer we’ve seen nine cases of measles in New South Wales, and others in Victoria, Western Australia, South Australia and Queensland. High vacci...
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Cannabis-based medicine eases seizures in Dravet syndrome
Medicinal cannabis
A phase III clinical trial has shown the cannabis-based medicine Epidiolex® (cannabidiol oral solution) to reduce seizures in children with Dravet syndrome, a rare and severe form of childhood-onset epilepsy.  Sydney Children’s Hospital, Randwick, was one of two sites in Australia to take part in the international study, which reinforced the safety and efficacy of the drug in reducing sei...
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NHMRC successes: from adolescent medicine to gene therapy
Grant success
A number of researchers from Kids Research will lead and collaborate on projects supported by the latest round of National Health and Medical Research Council (NHMRC) funding. Covering a broad range of disciplines, the projects will improve our understanding of adolescent medicine, gene therapy, immunology, congenital heart disease, cancer and burns to enable the development of innovative trea...
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Making sense of DNA mistakes in childhood cancer
Cancer
Written by Dianne Sylvester, University of Sydney PhD candidate at the Children's Cancer Research Unit, and Professor Jennifer Byrne, Head of the Children's Cancer Research Unit. It has long been suspected that cancer can be written in our genes, or in our DNA. This could also be true more often for childhood cancer patients. Cancer diagnosed at a young age could indicate a genetic cause, thro...
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Cnr Hawkesbury Rd & Hainsworth St
Westmead, NSW 2145, Australia

Bright Alliance, Level 8
Cnr Avoca & High St
Randwick, NSW 2031, Australia

General Enquires

T: +61 2 9845 1400
F: +61 2 9845 1317
E: schn-research@health.nsw.gov.au

The Sydney Children's Hospitals Network

Partners

Children's Medical Research Institute
Luminesce Alliance
The Westmead Institute
University of Sydney
UNSW Sydney

The Sydney Children's Hospitals Network

Address

Cnr Hawkesbury Rd & Hainsworth St
Westmead, NSW 2145, Australia

Bright Alliance, Level 8
Cnr Avoca & High St
Randwick, NSW 2031, Australia

General Enquires

T: +61 2 9845 1400
F: +61 2 9845 1317
E: schn-research@health.nsw.gov.au

Partners

Children's Medical Research Institute
Luminesce Alliance
The Westmead Institute
University of Sydney
UNSW Sydney