News & Events

Funding boost for cutting-edge health treatments

24 June 2022
Gene therapy

Viral Vector Facility

Kids Research welcomes the NSW government’s funding boost for biomedical research, putting the state at the forefront of cutting-edge health treatments. The Perrottet government has secured $270 million, announced in the state budget, to go towards two new facilities; the Viral Vector manufacturing facility at Westmead and the Sydney Biomedical Accelerator Complex in Camperdown. Premier Domini...

SCHN gene therapy experts speak at global events

21 June 2022
Gene therapy

Gene therapy

World-leading gene therapy experts at Sydney Children’s Hospitals Network (SCHN) have shared their knowledge and experience on a global stage. Researchers, Professor Ian Alexander and Associate Professor Michelle Farrar have spoken at separate conventions in California, after being honoured with an invitation to the events. The pair led the only Australian clinical trial of gene th...

Study confirms COVID-19 cases higher than reported

20 June 2022
COVID-19

COVID-19 study

A new study has found the number of Australian adults infected with COVID-19 at the end of February, was at least twice as high as cases reported to authorities. At least 17 per cent of adults are estimated to have recently been infected with SARS-CoV-2, the virus that causes COVID-19, with the majority of these infections believed to have occurred during the Omicron wave. This result, rele...

World-first treatment changes outlook for SMA babies

18 June 2022
Gene therapy

World-first SMA treatment

Babies diagnosed with Spinal Muscular Atrophy (SMA) at birth who received life-changing gene therapy are now celebrating their first birthday symptom-free or with minimal symptoms thanks to Sydney Children’s Hospitals Network’s (SCHN) world-first clinical trial. The SPR1NT trial, published in the prestigious journal Nature Medicine (two copies of SMN2 and three copies of SMN2), successfull...

WATCH: Advanced Therapeutics Webinar 7: Ethical considerations in rare disease clinical trials

30 May 2022
Advanced Therapeutics

Webinar series

In the 7th instalment of our Advanced Therapeutics Webinar series we focused on ethical considerations in rare disease clinical trials. As new treatments become available, and in populations without prior access, concerns around equity and suitability arise. Physicians, patients and their families can be faced with a situation where there are more patients than clinical trial spots. So, who...

Self-harm presentations rise for teen girls since the pandemic

24 May 2022
Mental health

Pandemic trends

The number of teenage girls who presented to NSW Emergency Departments (ED) for self-harm or suicidal ideation has dramatically escalated during the pandemic, following a steady increase over the past decade. A new study has investigated whether the COVID-19 pandemic has worsened trends in self-harm presentations in children and young people, which have increased globally over the last 10 year...

Finding the answer to allergies

19 May 2022
Clinical trials

Clinical Trials Day

There has been a dramatic rise in the number of children diagnosed with food allergies over the last two decades, with three in 10 children now developing a food-related allergy or eczema. Food Technology teacher Jessica Bales has witnessed this increase firsthand and says despite taking every precaution, the possible risk factor to the safety of her students induces stress and anxiety. “...

Flicker of hope for Neurofibromatosis (NF) cure

16 May 2022
Neurofibromatosis

Left to right: A/Prof Aaron Schindeler, Elizabeth Anne Elliott (Flicker of Hope Ambassador), Zoe Petropoulos (Flicker of Hope Ambassador) and Colin Allen (SCHF)

World NF Awareness Day

A new research project aimed at finding a cure for the genetic disorder Neurofibromatosis (NF) has been given a flicker of hope. The project underway at The Children’s Hospital at Westmead (CHW) has received $350,000 in funding from the Flicker of Hope Foundation delivered through the Sydney Children’s Hospitals Foundation. This boost will go towards a gene therapy approach to NF, led...

World-first breakthrough could prevent SIDS

09 May 2022
Research breakthrough

SIDS breakthrough

Researchers at The Children’s Hospital at Westmead (CHW) have made a ground-breaking discovery, identifying the first biochemical marker that could help detect babies more at risk of Sudden Infant Death Syndrome (SIDS) while they are alive. In a study published by eBioMedicine, researchers found the activity of a specific enzyme, Butyrylcholinesterase (BChE), was significantly lower in ba...

The world's most expensive drug now free of charge

30 April 2022
Gene therapy

Gene therapy

At four months of age Sophia is reaching all her developmental milestones. She demonstrates good head control while sitting supported and can even roll from her tummy to her back. Her parents Kaitlin and Max have not witnessed any decline in Sophia’s physical development and for this they are extremely grateful to the Paediatric Neurology team at Sydney Children’s Hospital, Randwick (SCH)....

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