News & Events

Nikita's Story
Nikita first came to The Heart Centre for Children because she had a hole in the top two chambers of her heart, known as an atrial septal defect (ASD). She is not the only person in the family to have a heart condition – her mother, grandfather and younger sister also have ASDs. Nikita’s mum, Danielle, had surgery to close her ASD when she was 20 years old and Nikita’s grandfather had his surg...
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Marmingee's Story
Grandmother Marmingee Hand from remote Fitzroy Crossing in Western Australia has a full time job looking after the two nephews and two grandchildren who live with her – especially as all have been diagnosed with Foetal Alcohol Syndrome Disorder (FASD). “It’s a challenge every day, but my husband and I accommodate their needs, every day it’s different,” she says. The Kids Research Institute...
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Research at the Kids Research Institute has shown that born babies who have surgery need more specialised care as they grow up than was previously thought. The international DAISY study is looking at the long term outcomes in babies who have surgery early in life. It has found that all babies who receive surgery are behind other children in language, cognition and motor development at both one...
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Sports medicine
The last thing 7 year old Jacob felt like doing during his long stay in hospital was exercising – but taking part in a research study on exercise and bone marrow transplant patients got him on his feet and moving again. Jacob needed a bone marrow transplant to treat his aplastic anaemia. Like other children who receive this life-saving procedure, it meant he had to spend many weeks in bed as a...
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Isa's Story
Little Isa Al Boush is one of only two children in the world with a particularly unusual form of a mitochondrial respiratory chain disorder, complex III deficiency. Using sophisticated gene sequencing techniques, researchers at Kids Research Institute discovered a new gene which causes his disorder. Isa was just five months old when he first got sick. He developed a fever and within minutes wa...
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Vaccines
Vaccines provide essential protection against devastating infections – but no child likes to have a needle. The HibMenC study was run at the Kids Research Institute to test a new way of vaccinating against meningitis C - a serious and potentially fatal infection – at the same time as haemophilus influenzae type b (Hib). As a result of the study, children can receive full protection against bot...
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embracing new technology
Adolescence is a time of upheaval for anyone – but young people with chronic conditions have the added demands of taking medications and attending medical appointments. When she was 13, Brooke received a double lung transplant because her lungs were failing due to cystic fibrosis. For nearly the whole of Year 8 she was confined to bed and on oxygen, unable to move without a wheelchair and the...
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Genomics
Many families whose children have a rare genetic disease wait years for an accurate diagnosis. For the Keesing family, new genetic sequencing techniques led to an unexpected diagnosis that has changed their lives. Brandon was just six months old when his chest problems started. For several years he was hospitalised repeatedly with pneumonia and experts at The Children’s Hospital at Westmead di...
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Cancer
One of the main problems with chemotherapy for children with brain cancer is that the drugs damage the bone marrow. Researchers at the Kids Research Institute have been working for 10 years to develop a radical new treatment which uses gene therapy to stop this from happening. If successful, the technique will enable children to receive much higher drug doses than they can currently tolerate –...
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Bernadette's Story
It started like any other toddler bug: a high temperature, nausea and generally feeling unwell. But by 5am Bernadette’s body was covered in tiny red and purple spots. As one of the most serious cases of meningococcal B ever reported in NSW, Bernadette was put into an induced coma, helped to breathe artificially and hooked up to a dialysis machine as her kidneys failed. She spent five weeks in...
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