News & Events

embracing new technology
Adolescence is a time of upheaval for anyone – but young people with chronic conditions have the added demands of taking medications and attending medical appointments. When she was 13, Brooke received a double lung transplant because her lungs were failing due to cystic fibrosis. For nearly the whole of Year 8 she was confined to bed and on oxygen, unable to move without a wheelchair and the...
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Genomics
Many families whose children have a rare genetic disease wait years for an accurate diagnosis. For the Keesing family, new genetic sequencing techniques led to an unexpected diagnosis that has changed their lives. Brandon was just six months old when his chest problems started. For several years he was hospitalised repeatedly with pneumonia and experts at The Children’s Hospital at Westmead di...
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Cancer
One of the main problems with chemotherapy for children with brain cancer is that the drugs damage the bone marrow. Researchers at the Kids Research Institute have been working for 10 years to develop a radical new treatment which uses gene therapy to stop this from happening. If successful, the technique will enable children to receive much higher drug doses than they can currently tolerate –...
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Bernadette's Story
It started like any other toddler bug: a high temperature, nausea and generally feeling unwell. But by 5am Bernadette’s body was covered in tiny red and purple spots. As one of the most serious cases of meningococcal B ever reported in NSW, Bernadette was put into an induced coma, helped to breathe artificially and hooked up to a dialysis machine as her kidneys failed. She spent five weeks in...
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Encephalitis, or swelling of the brain, can kill in hours. Five year-old Behnam Emery deteriorated from a sniffle and a headache at a birthday party on Saturday to intensive care by Monday morning. Behnam was transferred to The Children’s Hospital at Westmead from his local hospital. Fiona and Behnam’s father, Matthew, said goodbye to him as he was being wheeled off to have an MRI, and the nex...
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Bailey's Story
Each year, The Children’s Hospital at Westmead performs a third to half of all paediatric kidney transplants in Australia. A major focus of the Kids Research Institute is to find ways to make transplantation better. A kidney transplant saved six year old Bailey Haber’s life – but, like any transplant patient, he has to take medication every day to stop his body rejecting th...
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The Kids Research Institute has approximately 300 researchers and support staff. Our passionate team of world-class researchers are dedicated to improving the lives of children with many illnesses including cancer, bone diseases, genetic conditions, diabetes, infectious diseases, neuromuscular conditions, rare diseases, sleep disorders, kidney and liver disease. Our research involves basic sci...
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brain autoimmunity
In a discovery that could help many thousands of children around the world, researchers at the Kids Research Institute have discovered a new disorder that may explain why some children suddenly develop movement and psychaitric problems. After years of research, Associate Professor Russell Dale and Dr Fabienne Brilot-Turville, of the Institute for Neuroscience and Muscle Research, have identifi...
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