News & Events

Future Build
BUILDING OUR FUTURE
The largest Clinical Research Centre in NSW will be built at The Kids Research Institute (KRI), giving hope to families and supporting researchers in finding better treatments and cures for childhood diseases. Young patients will have access to new treatments. Minister for Health Jillian Skinner and Minister for Medical Research Prue Goward  visited  Kids Research Institute at The Ch...
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  • 30 June 2015
World first for T1 diabetes
Four-year-old Isla is the first person in the world  be reinfused with her own umbilical cord blood to determine whether it will delay or prevent the onset of type 1 diabetes. Led by Professor Maria Craig, the CoRD study is being conducted through Kids Research Institute, at The Children’s Hospital at Westmead. Isla, from Western Australia, is the first child - from more than 100 chi...
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  • 17 June 2015
Theodore was diagnosed in the womb during a routine ultrasound with a very serious condition, hypoplastic left heart syndrome. The left side of his heart did not develop. If not for the advances in medical research over the last twenty years, Theodore would have died. Knowing his condition in advance meant that his delivery was planned for nearby Westmead Hospital and he was  rushed...
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Tiana's Story
Tiana’s diagnosis of the congenital disorder neurofibromatosis type 1 (NF1) always made her vulnerable to breaking a bone – but when she fell off a beam at preschool and broke her leg, no-one could have anticipated her long journey to recovery. One of the characteristics of NF1 is that broken bones just won’t heal:  the disease prevents the cells from releasing the agents they need to gro...
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Sarah's Story
Sarah, aged five, was born with a rare lung disease, Interstitial Lung Disease. It means she needs to be connected constantly to her oxygen, needs help feeding and must be cared for by a large team of health professionals. The financial cost to her family has been substantial. “In the first year of life we were $18,000 out of pocket for medical expenses alone. We also had to install air condi...
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Research
The Stepping Stones Triple P is a parenting program specially tailored for parents of children with a disability. It gives parents and teachers the strategies they need to manage their children’s challenging behaviour and raise happy, confident children. Programs are usually delivered through hospitals and medical clinics, but the Kids Research Institute has been working with schools in NSW th...
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Nikita's Story
Nikita first came to The Heart Centre for Children because she had a hole in the top two chambers of her heart, known as an atrial septal defect (ASD). She is not the only person in the family to have a heart condition – her mother, grandfather and younger sister also have ASDs. Nikita’s mum, Danielle, had surgery to close her ASD when she was 20 years old and Nikita’s grandfather had his surg...
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Marmingee's Story
Grandmother Marmingee Hand from remote Fitzroy Crossing in Western Australia has a full time job looking after the two nephews and two grandchildren who live with her – especially as all have been diagnosed with Foetal Alcohol Syndrome Disorder (FASD). “It’s a challenge every day, but my husband and I accommodate their needs, every day it’s different,” she says. The Kids Research Institute...
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Research Story
Research at the Kids Research Institute has shown that born babies who have surgery need more specialised care as they grow up than was previously thought. The international DAISY study is looking at the long term outcomes in babies who have surgery early in life. It has found that all babies who receive surgery are behind other children in language, cognition and motor development at both one...
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The last thing 7 year old Jacob felt like doing during his long stay in hospital was exercising – but taking part in a research study on exercise and bone marrow transplant patients got him on his feet and moving again. Jacob needed a bone marrow transplant to treat his aplastic anaemia. Like other children who receive this life-saving procedure, it meant he had to spend many weeks in bed as a...
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